If only it were that easy. It's flippin hard to "charge the batteries" when you are mentally, physically and emotionally exhausted...perhaps not if you are GOD though...which i am definitely NOT...LOL!! I guess that means i am of "no good to anybody" then!! I appreciate the sentiment though. I hope your house is feeling better by now. XXLiv
LOL Liv. Yeah I know. I am pretty much no good to anybody right now too. I think *touch wood* we are starting to get better. Hope you guys are feeling better too. And we really need to work on that recharging of batteries thing huh?
E. LOL. Coffee is the only thing that keeps me going. If I don't drink it I fall in a heap!!
Hannah- Hope you are having a good day today.
I think sometimes as parents we all need that reminder that it is ok to have a break. Or to wish for one LOL.
Enough of my lovely quotes anyway. Next post will be about snow peas LOL.
I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day! Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS. Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school. The whole process has felt a bit messy. It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is. However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't. ...
We have been working hard on helping Ryley start eating proper food again lately. He has basically lived on artificial formulas for the past 10 years. Not that this is a bad thing. It has helped him grow and enabled him to move his muscles better, so I am very grateful that this has even been an option for us. But it time to start moving away some more from the formulas. The first change was when he came off the Ketogenic Diet. This was a massive step for us. It had been our security blanket for a very long time. It all went smoothly though. Since then he has been having 3 PEG feeds a day and we have also given him food at each meal as well has snack time. This has gradually helped him remember what food tastes like and allowed him to experience different tastes and textures again. Today, I had this glorious remark to David when he got home from work: " Ugh. Boys just eat sooo much. Ryley has not stopped eating all day. Teenagers..." When I think back to those e...
I am currently reading a book called 'Strong Mothers, Strong Sons', which is written by Meg Meeker. This is the beginning of my journey towards understanding what I could be doing better when it comes to supporting Ryley with the teenage years (this should benefit Braeden too!).Of course there is nothing in this book so far that relates to teenagers with complex disabilities ie. if they can't talk. However, I do feel as though there is some useful content. My plan is to start sharing my findings, and hopefully, start the process of developing some practical guides for parents of teens with a disability. One thing I have been reminded of, is how easy it is for a mother to cause pain in her son's heart. While she (or I, such is the case), is busy focusing on how she is feeling about her son's behaviour , her son is slowly backing away because he doesn't feel as though she cares. I get this. It is so easy to make a young person's behaviour per...
Just wanted I needed to read today! Thank you for the reminder.
ReplyDeleteAhh... so that exaplins why I have been drinking so much coffee lately. I must have had this in mind. LOL.
ReplyDeleteIf only it were that easy. It's flippin hard to "charge the batteries" when you are mentally, physically and emotionally exhausted...perhaps not if you are GOD though...which i am definitely NOT...LOL!! I guess that means i am of "no good to anybody" then!!
ReplyDeleteI appreciate the sentiment though.
I hope your house is feeling better by now.
XXLiv
LOL Liv. Yeah I know. I am pretty much no good to anybody right now too. I think *touch wood* we are starting to get better.
ReplyDeleteHope you guys are feeling better too. And we really need to work on that recharging of batteries thing huh?
E. LOL. Coffee is the only thing that keeps me going. If I don't drink it I fall in a heap!!
Hannah- Hope you are having a good day today.
I think sometimes as parents we all need that reminder that it is ok to have a break. Or to wish for one LOL.
Enough of my lovely quotes anyway. Next post will be about snow peas LOL.