I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day! Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS. Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school. The whole process has felt a bit messy. It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is. However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't. ...
Oh dear - I think the worst of those is poo on your shirt before work - that is not a good start to the day!
ReplyDeleteOh darlin! I hope one of your workmates was kind enough to go get you a coffee at the very least xx
ReplyDeleteOh crap (literally ; ) !!!
ReplyDeleteHave you been able to source the Ketocal? -Bastards. And the PEG!!??? Shiz man.. what happens when he pulls it out? Can you put it back in or does the Hospi do it??
I hope all has worked out.. let me know if i can help somehow.
XLiv
Alison- Yep definitely was the worst bit!
ReplyDeleteKirrily- Nope no coffee, but the computer system went down so I could go home early. Was a better option than the coffee!!
Liv- I just put the PEG back in, so no drama really. But just another thing to add to the mix.