A Blog About a Bloke-Living with WHS

At the moment, I am just surviving. I should have known it was only a matter of time before I fell over again and needed some help to get back up. Stress. Anxiety. Exhaustion. They seem to come hand in hand don't they? And I should have really just taken a moment when I felt the stress building up. I should have just said 'hey, I need a day or two to myself'. But I didn't. And here I am. I am ok by the way. Just in between sick kids, a sick me, work, a zillion extra appointments to somehow squeeze into my already full days...well...it all just became a bit much. Cue: Me in tears sitting in my Managers office. Thank goodness I have a supportive and wonderful workplace. She saw I needed time out and told me to take it. The worst bit of it all is the stupid anxiety that came back. For those that suffer from anxiety (whether it be a sometimes thing like me, or an ongoing disorder), it truly sucks the life out of you. My body just completely went into adre...

Who would have thought the real danger in these centres was your own kids?

I haven't really felt like blogging lately. Not that I don't have oodles of interesting stuff to say (all my lovely readers know that of course). Life, as usual, gets in the way. Yesterday Ryley had what we think was another complex partial seizure. 15 minutes long. Repetitive gagging this time, with vomiting beforehand again. We didn't call an ambulance. We didn't administer the midaz. Why? Well, to be honest, we just didn't know what the right course of action was. That's the thing about seizures. Sometimes it is better to just do nothing and see what happens. Although others may disagree (you know, doctors and other medical people...). But we know Ryley better than anyone else. And we are well and truly trained in how to manage epilepsy. Ryley responded a couple of times via eye contact during the seizure, so we felt he was ok. We figured all the ambos would do would be administer oxygen and possibly the midaz. And we actually felt he di...